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i am a 33 year old female with a family history of breast cancer. i do not have cancer but i have opted to have a prophylactic breast mastectomy (pbm) to manage my personal risk. this blog is to document my journey and to get my thoughts and feelings out. it is a way for me to cope and to hopefully help others along in this same journey or to empower others who struggle for understanding.
Human's Power Over Cancer
Humanity has an incredible ability to persevere through hard times and unfortunate situations. This ability is enhanced when positivity is displayed through all the people that one deals with.
Cancer survivor networks have helped thousands of cancer patients understand and cope with their condition. Moreover, it surrounds patients with other people in the same situation. There are groups for different kinds of cancer, such as colon cancer, breast cancer and skin cancer. There are even groups that are specially designed for patients with a rare cancer, like mesothelioma. Here are some specific reasons why cancer survivor networks are important.
It allows patients to exchange thoughts
Cancer patients are constantly thinking about their situation and need a support group to sort all the thoughts they have. Many patients have questions that they either are scared to ask a doctor about or forget to ask a doctor during their visit. These relaxed groups help patients, and even encourage patients, to write a list of questions that they want to ask the group and group leaders.
Some common topics during a session include life expectancy questions, tips to help recover from chemotherapy, how to stay positive during treatment, and why it is so important to stay positive during treatment.
It helps patients develop a positive outlook and sense of well-being
Having talked about their condition, many patients leave each group session feeling positive and ready to embrace the world during their battle with cancer.
This positive outlook and sense of well-being not only helps patients mentally, but also physically. Studies show that a positive outlook helps the body to relax, allowing the immune system and other important bodily functions to operate in an efficient manner.
It allows patients in remission share their experience
Cancer survivor networks are for patients in all stages of cancer, including remission. Therefore, remission patients can share their experience to other patients who are still going through treatment or have yet to go through treatment. A remission patient's uplifting and encouraging stories can help other patients to feel empowered and less anxious about their condition.
Conclusion
This link http://www.cancer.org/Treatment/SupportProgramsServices/index connects patients with survivor networks. However, there are also online cancer survivor network programs to help patients who are confined to their house, though some people may say they are not as effective as in-person groups.
If you are going through cancer treatment, you should connect yourself to a survivor network. The friends you will meet and the information you will gain will be invaluable.
By: David Haas
On a more realistic note, I have been aware of my risk for breast cancer the past 3 years. Apart from the possibly damaging BRCA2 mutation, I have already been assessed as having a 35-40% risk factor for breast cancer based on family history and personal risk factors alone. I have since reduced my risk to between 1-3% by undergoing a bilateral prophylactic breast mastectomy in April of 2010.
My personal story starts like many other stories before me. In November 2007, I casually found a lump in my left breast while sitting at my computer. Instantly, I was filled with fear. At 31, I had never paid attention to my breasts. Sure, I performed the odd breast self examine, but the fact was, I had detached myself from my breasts and had much self-loathing towards them. Ultimately, I half-expected them to kill me after watching my mother battle and succumb to breast cancer at the young age of 38.
Within an instant of discovering that lump, I was overcome with overwhelming fears that my breasts were going to betray me. In fact, they had. Fortunately, the lump was benign, but I was diagnosed with various proliferative breast diseases including Fibrocystic Breast Disease, Apocrine Metaplasia, and Sclerosing Adenosis (pre-malignant). The lump I originally discovered turned out to be an Intraductal Papilloma.
With these findings, I was thrown into the world of high-risk surveillance. Every 3-6 months, I would have a mammogram, ultra-sound, MRI, or any combination of the 3. After 2 years of surveillance, it no longer became the right choice for me. High risk surveillance equaled high anxiety 24 – 7. I was breast obsessed! After much heart ache and research, I gradually came to the decision that I would have a bilateral prophylactic breast mastectomy – the removal of both my breasts.
On April 14, 2010, I underwent a Nipple Sparing PBM with expander placement. I experienced several complications following surgery including a Pneumothorax (collapsed lung) and Clostridium Difficile (a bug I picked up while in hospital, which, in combination with antibiotics, caused severe diarrhea and dehydration requiring an additional 3 day hospital stay), but luckily, nothing that affected the outcome of my surgery.
I am in celebration mode now! After undergoing 8 months of reconstruction from my first surgery in April of 2010, on December 6, 2010, I had my exchange surgery. My results are stunning and impressive. As I write this, it has only been 7 days since my final surgery, but I finally feel that this chapter of my life is closed. I can truly move forward with out the threat of cancer and live my life! Life is moving full speed ahead and I am so ready to give back to the friends, family, and strangers that have given so much to me over the past few years. In January, I will be embarking on a new life, and attending college to become a Nurse.
If you would like to learn more about my story, I invite you to visit my blog: http://losingtheboobs.blogspot.com I had much support during my experience from sources such as FORCE and other fellow bloggers like Claudia who’ve experienced similar journeys. It has been therapeutic to document my story, knowing I am helping take the mystery and fear away of breast mastectomy with reconstruction. I am very candid about my experience and show no shame by sharing photos of my surgery, reconstruction, and exchange. I invite you to visit my site, or recommend it to a friend who may be in need of the resources I share on my blog.