Sunday, July 8, 2012
97. Guest Poster: San Diego Plastic Surgery Clinic
Tuesday, December 6, 2011
96. One year ago today...



Tuesday, September 13, 2011
95. Guest Post: David Haas
Human's Power Over Cancer
Humanity has an incredible ability to persevere through hard times and unfortunate situations. This ability is enhanced when positivity is displayed through all the people that one deals with.
Cancer survivor networks have helped thousands of cancer patients understand and cope with their condition. Moreover, it surrounds patients with other people in the same situation. There are groups for different kinds of cancer, such as colon cancer, breast cancer and skin cancer. There are even groups that are specially designed for patients with a rare cancer, like mesothelioma. Here are some specific reasons why cancer survivor networks are important.
It allows patients to exchange thoughts
Cancer patients are constantly thinking about their situation and need a support group to sort all the thoughts they have. Many patients have questions that they either are scared to ask a doctor about or forget to ask a doctor during their visit. These relaxed groups help patients, and even encourage patients, to write a list of questions that they want to ask the group and group leaders.
Some common topics during a session include life expectancy questions, tips to help recover from chemotherapy, how to stay positive during treatment, and why it is so important to stay positive during treatment.
It helps patients develop a positive outlook and sense of well-being
Having talked about their condition, many patients leave each group session feeling positive and ready to embrace the world during their battle with cancer.
This positive outlook and sense of well-being not only helps patients mentally, but also physically. Studies show that a positive outlook helps the body to relax, allowing the immune system and other important bodily functions to operate in an efficient manner.
It allows patients in remission share their experience
Cancer survivor networks are for patients in all stages of cancer, including remission. Therefore, remission patients can share their experience to other patients who are still going through treatment or have yet to go through treatment. A remission patient's uplifting and encouraging stories can help other patients to feel empowered and less anxious about their condition.
Conclusion
This link http://www.cancer.org/Treatment/SupportProgramsServices/index connects patients with survivor networks. However, there are also online cancer survivor network programs to help patients who are confined to their house, though some people may say they are not as effective as in-person groups.
If you are going through cancer treatment, you should connect yourself to a survivor network. The friends you will meet and the information you will gain will be invaluable.
By: David Haas
Sunday, September 11, 2011
94. following up and my health
i found out our brca2 mutation of unknown significance had be down-graded to a status 4-5 which means through study, they consider this mutation harmless and not responsible for the cancers in my family.
this is good i suppose, but it doesn't put the puzzle pieces together for my family. it also does not qualify me for additional surveillance on top of my mastectomy.
in canada, post mastectomy follow up consists of annual clinical breast exams by my family doctor. no additional imaging. i asked about a base-line mri and they don't do that here either. should something "show up", the steps would be an ultra sound and then possible mri.
we went over my family tree again. there are still a lot of questions on my mother's father's side. this side has not been tested. there is still a lot of gaps in data but because most of the family past the 1st generation lives in holland and is not english speaking i have put all the digging around to get information on hold. it is too stressful and school takes up way too much time.
as for my health...i've been in reasonable good health through out the past 2 years and my whole ordeal. i had been eating exceptionally well and only had one cold. aside from complications that i could not really prevent (c-diff and pneumothorax post surgery in april of 2010), i was surprised to find out a few weeks ago that i had been walking around and going to school with pneumonia for the past 2-3 months!!!
i had been complaining often of shortness of breath, difficulty breathing on extremely hot and humid days and remarked to many that i thought i was developing asthma or that i was anemic. blood work came back perfect. i feel slightly embarrassed that i did not recognize that i had pneumonia as this is now the 4th time! had i known, i would have sought treatment much earlier. the only thing i think that threw me was every other time i have had pneumonia in the past, i had an aggravating cough that would keep me up all night and fever/night sweats. i had none of that with this bout.
after a 2 week round of antibiotics and a bout with a superinfection (again...but thankfully not c-diff) i think i am feeling better. i did not get a phone call from my follow-up chest x-ray so i hope that means its all clear. i am still feeling short of breath and tired but this could be because my body has been deconditioned (to cause to decline from a condition of physical fitness, as through a prolonged period) so i need to work on increasing my fitness level again.
sorry for the late response/follow-up from my last post. i do blame this on the pneumonia. it's great to have excuses. lol. my excuse now if i don't post is that semester 3 just started for nursing. i am officially half-way through the program. this semester i will get to go into the OR and witness a few surgeries. this is very exciting for me. maybe i will get to see a double mastectomy!
***stay tuned for a guest post this week from David Hass on "Human's Power Over Cancer" and how to utilize Cancer survivor networks.
Tuesday, August 9, 2011
93. dusty
i am currently nearing the end of semester 2...that means i am pretty much half way through the course. finals start this week and run into next week. then 2.5 blissful weeks off. i so need it. i would like to enjoy the summer before it disappears and the snow makes its appearance again.
i don't have classes tomorrow, but tomorrow is the day i meet with the new genetics counselor which will hopefully be able to determine which route i should take in regards to surveillance now that my breasts...are gone! i have read different opinions. i'm just not sure what to do. i don't think i should be doing nothing at all because as we all know, there is always residual breast tissue after mastectomy. i still have my lymph nodes...and breast cancer could still start in the arm pits, etc cuz there is tissue there too.
i will let you know how it goes. it may be a few days. hopefully i remember to post in the flurry of studying and trying to maintain my honor roll status when writing my exams. it sure is stressful. semester 2 was harder than semester 1.
if you are reading this and it is subsequently 1 month since i have posted, please send me a message.
apologies to my blogging community/brca sistas! i have no idea what is going on in your lives right now. i miss you. i hope to get caught up and connect with you over my mini summer break. you gals are in the back of my mind. i know you were rooting for me to get to this point, and yes my life has gone on. i hope not to forget about this blog though. it's just on slow motion right now while i am in school.
lots of love...and if you are someone who has just come across my page and are looking for support, please message me because i do make it a priority to help out our community:)
oh...and just found this cool link that sums up PBM nicely:
http://www.cancer.gov/cancertopics/factsheet/Therapy/preventive-mastectomy
Sunday, June 12, 2011
92. boobless get-together!
this started off so innocently enough. i had given permission to my plastic surgeon Dr. Avram to share my blog with his patients. through my blog i have been able to connect with some of these women in my area and offer them advice and reassurance through face book, emails and phone conversations. i have been able to connect some of these women with other women i have met through FORCE who are going through the same things at the same time.
a lady who i connected with through my blog - Alana, was so awesome enough to put a gathering together for us to all meet. this past Friday, 7 women (+ 1 mom) met for the first time at a restaurant. the kinship was immediate. within minutes we had connected on an intimate and personal level. we laughed and we cried. we joked around and we hugged. we shared our ups and our downs and i can say for certain that at the end of the night we all left with a glow in our hearts.
it has always been my hope all along that my blog would help to empower others along the same or similar journey as me. that hope was completely surpassed when a complete stranger who i had only met an hour before toasted me and my blog. with tears glistening in her eyes she looked into mine and struggled to stammer out the words of how much hope my blog gave her and her daughter during such a frightening time when her daughter was diagnosed with breast cancer and everything was unknown.
as i recall the memory now i am overcome with happiness and joy and yes some tears, that i as a human being could offer such hope to just one family. it is almost surreal and hard to believe! surreal that 7 women were raising their glasses in honour of me! hard to believe that i, just one person, could have so much impact on other people's lives.
thank you to the wonderful women i met this weekend. i can't wait to get together again. and to the one's who couldn't make it, there will be more get togethers to come!
Tuesday, May 17, 2011
91. where do we go from here
i think i may have mentioned before...maybe not, but i have been very confused with my grand-mothers brca results. as mentioned, we have a brca2 mutation of unknown significance. this unknown significance mean i don't know what to do. should i be doing any additional screening? should my family be doing any additional screening? should my uncle at 58 who has just been diagnosed with prostate cancer be tested since we now have a living affected family member?
these were all questions i asked my breast surgeon. she sent off a referral to a high risk clinic with in the Juravinski that can better help me answer these questions. the genetics counselor already called me the next day to do an over the phone assessment. she will be in touch with my genetics counselor that i have lost touch with at mcmaster to get my file transferred over.
i was still impressed with the amount of information my breast surgeon knew. she suggested annual skin checks for melanoma...which DOES run in our family...i am actually getting a mole removed next month that i showed my plastic surgeon who did my reconstruction. he volunteered to remove it since it's something else he does.
so there is ambiguity, but i feel that i am in good hands. i am excited to meet with the high risk clinic. i am going to be seeing a high risk doctor that another brca friend suggested. i am excited to get some answers and not be stuck with all this wondering.