Sunday, April 3, 2011
84. still here!
one year is fast approaching since i had my mastectomy. i will be sure and do a one year post; complete with pictures. april 14th...save the date:)
Sunday, February 27, 2011
83. this is cool and why i have had no pics of my boobs recently
pretty cool right? see all those red dots? these are where people are in the world that are visiting my blog. if i hover over one of the red dots when i go to my lifestat screen, it will tell me the specific country and state/province and city people are visiting from and also how many times they have visited my blog.i think it is so cool that i have had visitors from all over the world!
as for photo updates...i wish to inform you all that i sold my camera a few months ago to help with school. hopefully i can get my hands on a professional camera soon and take up-to-date pictures of how things are healing and settling. for my own personal reasons i would also like to compare because i am starting to get impatient with the healing of my scars and think they have actually gotten bigger:(
happy march break to those that have it coming up. i have one week off right now and so need to catch up on my rest and have some fun!
Tuesday, February 15, 2011
82. purpose, brca results, and slippery slopes
about an hour later, this female called me and we chatted for about a half an hour. like me, she had already spent hours researching her stuff and knew what type of questions to ask. i was able to give her my personal experience side of things and some tips on what to expect and how to prepare for possible complications. she was very grateful and we both felt very good after our conversation. i got her email after, and shared some further information and links with her.
a., if you are reading this, thank you so much for talking with me. i wish you all the best and as i mentioned, i am here for you as much as i can be for someone who does not drive;) i hope speaking with me will help take some of the anxiety and feeling of not knowing away. i commend you for being proactive with your health and doing what 'needs to be done' for your kids and family.
on a separate note, i have not shared my family's brca gene testing results yet. it's been a few months since we received our result and i didn't know how to process it. genetic testing was done on my mother's mother's side of the family, and as of yet i have not shared the results with you guys. well here are the results.
brca2 mutation - unknown significance.
still don't know what to make of this. i don't know if i have this particular brca2 mutation because they will not test related family members when it is a mutation of unknown significance.
so, i am still glad i went forward with my pbm and didn't wait around for results. i am glad i made my mind up before any possible results.
as for this result. it has been graded as possibly going either way. the genetics counselor said to check in once a year to see if any further information comes to light which would indicate whether or not our particular mutation is harmful or not...or lets just say whether it is what is causing our familial cancers or not.
so here is the slippery slope. some scattered cancers have appeared here and there on my mother's father's side. to date, there has been a young breast cancer on his side, my mom's father has had prostate cancer (treated and in remission), her uncle had lung cancer, and now within the past few weeks another one of her uncles (my great uncle) has been diagnosed with the dreaded pancreatic cancer.
so now i have the nagging fear that maybe there a genetic defect on the other side too. at this stage of the game, i am sure there is nothing to be done. i do not think this side has any interest in genetic testing and does not at this stage see a need for it because there are not as many cancers on this side in comparison to my grandmother's side.
i guess all i can do for now is give the updated information to my genetic counselor and let her make sense of it. but damn, this cancer stuff sucks! nothing like getting those phone calls that another family member has cancer.
Saturday, February 5, 2011
81. so out of the loop
school has taken over my life! i have no idea what is going on in the brca blog-o-sphere anymore. i miss so many of you!
yesterday was my second friday in clinical placement (i'm going to school for nursing - clinical is hands-on training and practical). it was such a great experience and i got a lot of positive feed-back from my class-mates and the staff at the hospital.
i wanted to share, that through out the entire day at clinical, i did not think once about my boobs! i am no longer my boobs. i am no longer my mastectomy. i am no longer my surgery or reconstruction. i am no longer a patient. i don't know if you know what that means or not. some of you will. up until a month ago, this boob stuff was always in my thoughts...permeating everything i did and thought.
i am now just me. a nurse. a student. coming into my own. my 3 year journey no longer defines me. it now is just a memory and something that gave me strength. showed me what i was made up. showed me my strength.
:)
so in regards to my surgery...i am able to sleep on my tummy every night now. i get more and more used to it every night. it is still a conscious event of turning onto my stomach to get comfortable.
hmmm...what else.
oh i wanted to give a shout out to a new blogger. please welcome her to out community and check out and comment on her blog: http://andthentherewasoneboob.blogspot.com/
Stephanie sent me a very nice personal message. her blog is really cool. last year she got married twice, once in london and again the next day in paris. the picture on her blog is totally her. i love her wedding dress! this past december (not even 2 months ago) Stephanie was diagnosed with breast cancer. she is currently going through treatment and reconstruction of her breast that was removed via mastectomy. please pass by her blog and give her some support. i know y'all are good at sharing the love!
Saturday, January 22, 2011
80. featured! on previve.com
claudia gilmore is documenting her experience and created previve.com. i credit claudia with empowering me to look at my journey differently. it wasn't until a few months ago that i felt i could embrace the word previve and be proud of my journey. now that i am completely done with the mastectomy and reconstruction i am proud of myself! i have seen what i am made of and i know who i am now. and...i am a previvor!
Rachel Hommersen
By Previve on December 22, 2010 | Category: Previvor Stories | 1 Comment
On a more realistic note, I have been aware of my risk for breast cancer the past 3 years. Apart from the possibly damaging BRCA2 mutation, I have already been assessed as having a 35-40% risk factor for breast cancer based on family history and personal risk factors alone. I have since reduced my risk to between 1-3% by undergoing a bilateral prophylactic breast mastectomy in April of 2010.
My personal story starts like many other stories before me. In November 2007, I casually found a lump in my left breast while sitting at my computer. Instantly, I was filled with fear. At 31, I had never paid attention to my breasts. Sure, I performed the odd breast self examine, but the fact was, I had detached myself from my breasts and had much self-loathing towards them. Ultimately, I half-expected them to kill me after watching my mother battle and succumb to breast cancer at the young age of 38.
Within an instant of discovering that lump, I was overcome with overwhelming fears that my breasts were going to betray me. In fact, they had. Fortunately, the lump was benign, but I was diagnosed with various proliferative breast diseases including Fibrocystic Breast Disease, Apocrine Metaplasia, and Sclerosing Adenosis (pre-malignant). The lump I originally discovered turned out to be an Intraductal Papilloma.
With these findings, I was thrown into the world of high-risk surveillance. Every 3-6 months, I would have a mammogram, ultra-sound, MRI, or any combination of the 3. After 2 years of surveillance, it no longer became the right choice for me. High risk surveillance equaled high anxiety 24 – 7. I was breast obsessed! After much heart ache and research, I gradually came to the decision that I would have a bilateral prophylactic breast mastectomy – the removal of both my breasts.
On April 14, 2010, I underwent a Nipple Sparing PBM with expander placement. I experienced several complications following surgery including a Pneumothorax (collapsed lung) and Clostridium Difficile (a bug I picked up while in hospital, which, in combination with antibiotics, caused severe diarrhea and dehydration requiring an additional 3 day hospital stay), but luckily, nothing that affected the outcome of my surgery.
I am in celebration mode now! After undergoing 8 months of reconstruction from my first surgery in April of 2010, on December 6, 2010, I had my exchange surgery. My results are stunning and impressive. As I write this, it has only been 7 days since my final surgery, but I finally feel that this chapter of my life is closed. I can truly move forward with out the threat of cancer and live my life! Life is moving full speed ahead and I am so ready to give back to the friends, family, and strangers that have given so much to me over the past few years. In January, I will be embarking on a new life, and attending college to become a Nurse.
If you would like to learn more about my story, I invite you to visit my blog: http://losingtheboobs.blogspot.com I had much support during my experience from sources such as FORCE and other fellow bloggers like Claudia who’ve experienced similar journeys. It has been therapeutic to document my story, knowing I am helping take the mystery and fear away of breast mastectomy with reconstruction. I am very candid about my experience and show no shame by sharing photos of my surgery, reconstruction, and exchange. I invite you to visit my site, or recommend it to a friend who may be in need of the resources I share on my blog.
Monday, January 17, 2011
79. 9 months! i could have had a baby but instead i got new boobs!
NO BABY.
JUST NEW BOOBS!
thoughts?
many.
here are a few. some verbal diarrhea.
ptsd? i think i might be having some post traumatic stress. i think i need to go for some counseling to wrap my head around everything...the 2 year agony leading up to surgery, the biopsies, surgery, pneumothorax, c-diff, exchange. all of this mental and physical stuff has taken a toll and i have mostly kept it to myself and stuffed it.
i broke down the other day at school while getting my flu shot (which i am against), and i felt like i could have cried for a century. of course it was not the time or place. the thing is, when i was going through all of the above shit, i was trying to stay positive and focused just to get through. it never really felt real or like it was actually happening. i never really dealt with what i was actually going through because i needed to stay 'strong' in order to get through it. i was mostly in reasonable mind/intellect mode.well, now the emotions are surfacing. sigh. and life is happening! life is great! but it is a huge change to what i have been experiencing over the past few years...medical issues and lots of isolation. i also have a lot of emotions i need to work through over the assault.
fortunately, college seems to be a good starting point in finding someone i can talk to. they offer free counseling services which will also be beneficial with getting added advice on my studies. the other option is, i can return to my nurse that i was seeing a few years ago when all of this shit happened and before i moved up north.
as for the actual boobs...foobs...
they are great...thanks for asking:)
now that the swelling has gone down, there is some noticeable rippling but that is just part of the story folks! they still look beautiful. they have been feeling really tight the past few weeks, but hopefully that is because i have been doing too much with the move and lugging 50 pound books around. i was also told by the ps that inflammation sets in around week 6 so things are still going to change and look different.
i started massaging last week (lol...even while in class), and joyfully located my bio oil last night which was promptly massaged into my scars after a relaxing bath. the scars are still very, very red, so hopefully the bio oil will help diminish that, as it seems to be one of the best advice for scars on the FORCE boards.
oh! and last night was the first night in eons that i was able to sleep on my stomach again. i am excited about going to bed tonight and having a more restful sleep.i guess that is all for now. i am swamped with school. i love my new apartment. and among all that, i have recognized that there are some sensitive emotions that need attending to despite all the positive joys happening in my life right now.
back to the books!
Wednesday, January 12, 2011
78. life!
i moved.
and i started school.
i haven't had a chance to catch my breath from the move and barely had time to unpack before i started college this past monday. i will say though, that i am loving being back in the big city, love my new apartment, love seeing my cats so happy in it, and i love being in school.
life is so completely different and new compared to last year that it makes it easy to go about my day barely thinking about what i endure this past year. how great is that?!?! life goes on!
anywho, tomorrow i finally have my post-op appointment for my exchange surgery. it was delayed due to being 'snowed in' up north. now that i am back in the city, my plastic surgeon is easily accessible. only a 5 minute drive from where i live:)
sorry if i seem neglectful in the coming months. i will try to check in every once in a while and i will try to do a follow up post in the next coming days to let you all know how my post op goes in the morning:)
turning in now for some much needed rest.
ZZZZZZZZ


